My son, Conner, was born with a rare syndrome called Bardet-Biedl Syndrome (BBS). BBS is a ciliopathic human genetic disorder that affects many body systems. Principally, obesity, retinitis pigments, polydactyly, hypogonadism, and renal failure, in some cases, characterize BBS.

Conner must travel to Marshfield, Wisconsin to a facility called the Marshfield Clinic. They have a team of doctors that specialize in the treatment of BBS. Conner will be at this clinic for 4 days. While there, he will see 11 different specialists. We hope they will give us answers about Conner’s current health and tell us what we need to do for his care for the future.

Thank you for your consideration for these flights. It means so much to our family to get the best care for Conner.

Conner's mother
Arizona

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